Trials of Grace

Life with Batten's Disease
Update on Charlotte (6/20/25)

Update on Charlotte (6/20/25)

Charlotte's breathing has been mostly stable throughout the night. They plan to take her off the antibiotics as her lungs sound clear! Praise the Lord! Every so often she sounds like she's struggling to get a good breath, but they said it's probably due to only...

Evening Update on Charlotte (6/19/25)

Evening Update on Charlotte (6/19/25)

“Praise Him for His mighty acts: praise Him according to His excellent greatness. (Psalm 150:2)” Charlotte’s breathing tube is out, and she is breathing on her own! We are rejoicing over this wonderful answer to prayer and thanking God for this small victory tonight....

Morning Update on Charlotte (6/19/25)

Morning Update on Charlotte (6/19/25)

6/19 Update: The doctors want to see Charlotte breathe more on her own, so they tried to turn down the ventilator, but their attempts were unsuccessful. They have been decreasing her sedative hoping she'll participate more for their future tests, but they are worried...

Urgent Prayer Request for Charlotte (6/18/25)

Urgent Prayer Request for Charlotte (6/18/25)

Please pray for Charlotte. We found her unresponsive in her bed this morning and called 911. The paramedics took her directly to the hospital and treated her for severe seizures. There was a moment at the hospital when she was in critical condition and the doctors...

God the Sustainer

God the Sustainer

“Cast your burden upon the Lord, and He shall sustain thee: he shall never suffer the righteous to be removed.” (Psalm 55:22). When overwhelming trials enter our lives, our human response is to feel afraid, discouraged, and anxious. The fear of the unknown consumes us...

How We Cope

How We Cope

People ask us how we cope knowing our two daughters have a terminal disease and how we meet their special needs. The expected human response is that we should be broken down in grief and despair whilst they slowly die. We should experience tremendous heartbreak that...

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